Laurie's Heart Update

Wednesday, September 27, 2006

Tuesday 9/26 She Busted Out of The Joint

TUESDAY 9/26

Laurie was released from the hospital today and is now at the Holiday Inn—Brookline ..... She will be there at least until Wednesday 10/4 when she has her followup Dr's visit (rescheduled from 10/2 since it is YomKippur) - hopefully after the exam she can make her way to the airport and then HOME!!! Please Refrain (& I know it is hard to do so, esp since she has been so uncomfortable this time) from sending anything to the hotel and make up for it when she returns home! Thanks,

Brenda
I also talked to her yesterday and she is thrilled to be out of her SEMI-private hospital room. She went 5 nights with little to no sleep (not exactly ideal for recovery) and is glad to be at the QUIET hotel.

Katie

Monday, September 25, 2006

Monday 9/25

MONDAY 9/25 2:17pm

I just spoke with Laurie and she has been moved to a semi-private room so hopefully she will be able to get some well deserved rest - EXCEPT for the fact that they wake her up at 4:30AM to give her medicine - she's not a happy camper about that!  She still has the chest tube and still draining alot. She also still has 5 IVs plus the chest tube, so she is very dependent on the nurses to help her get around whenever she needs anything, and as you can imagine our girl who is so "Miss Independent" does NOT like that at all! Not sure how long she will remain in the hosiptal all depends the drainage!

She was feeling a bit down today and tired of the whole process and wanting to come home! Keep her in your thoughts and prayers.

Thanks,  Brenda

I talked to Laurie tonight too and ditto on the early wakeups...she's not happy about that. But, when I was on the phone with her we got cut off because they were going to remove her chest tube. She was VERY happy about this. She said it was pretty uncomfortable to have it in. So...that's the latest.

Cheers,
Katie

Friday, September 22, 2006

Friday 9/22

brenda said...
FRIDAY 9/22/06 2:00PM

Heard from Martha and Laurie has been moved TCU (Thoratic Care Unit). There are 4 other sick patients in her room, so she is "sharing" the care of the nurses, there's a lot of noise and she's not resting well. She is in a lot of pain, and still has the epidural, which eases the pain, but makes her nauceaus and means she has to have a tube in her bladder as well.

She is not sleeping well and has not had any solid food, only crackers, some ice chips, still has a lot of draining from the chest and they won't provide much liquid until that clears/stops as the lung does better in a drier environment (hope I relay these messages correctly as I am a NON MEDICAL person!) They have not really spoken to the doctor yet as to get any real details of surgery and what to expect, but she is up, trying to walk, talking, her color is good - Martha went back to the hotel to bring Laurie her tapes so she could try to relax/rest better. Not sure yet how long she will be in the TCU or how long she will be in Boston - just taking it a minute at a time! .....stay tuned

Brenda

Thursday 9/21

Thursday 9/21 - 10:25am

GREAT NEWS!!!!I just heard from Laurie's mom and she is OUT of surgery and the doctor was able to fix both hernia's! The surgery took less time than he anticipated - he had booked the OR for 3 hours and the surgery took a little more than an hour! "Mom" and Martha will be able to see her around 11:30-12:00p today. I will update after that!

THANK YOU PRAYERS and A HUGH SIGH OF RELIEF are in order here!
Brenda

Wednesday 9/20

Brenda said... 9/20/06 6:42pm.....

Hi All,I AM BACK (although I was never away)......I will continue to update the blog until our girl is better.....I just spoke with Laurie and she had her testing done this morning and will be having the full thoracotomy, which is when they have to make a large incision between the lower ribs to get into an undamaged part, then go up the inside wall to free up the lung and "unstick" it from the chest wall, put in mesh and sew the ribs together with wire. Additionally they will probably go in another way to get to the outside of the rib cage for mesh there. While it doesn't involve her heart stopping again it is still a very big surgery.

She is a maintaining her spirits and will be the first surgery in the morning, which she was glad of......She also said that she ran into the 'infamous' Dr.Cohn while she was at the hospital today, they chatted and he told her that he would be right there with her in surgery - how do you spell RELIEF!!!!! She was very releived, should there be any problem, he can step right in and not miss a thing!

Remember the lavendar tomorrow and LOTS of prayers coz our little lady is going to be in a lot of pain for a while!!!!! I will write more tommorrow after the surgery! 6:49 PM

Tuesday, September 19, 2006

P.S. Sept 10th posting has details

For explanation of this round, see that post. Man, I need to get to bed. But so much to do.... Laurie

Monday, September 18, 2006

Mon, Sept 18: Off to Boston--again!!

Also known as Round #3!!

Feeling much less organized than last time.... Here is the schedule, as least as much as is known now:

Tues, 9/19, Mom and I fly USAir #970, arrive in Boston 2:51 pm. Staying at Holiday Inn--Brookline (B & B was already booked). Less than a mile to Brigham, shuttle provided.

Weds, 9/20: pre-admit testing 9:00 am, then appt with Dr. Bueno, the thoracic surgeon, at 1:15. He doesn't know yet about the two hernias!!

Thurs, 9/21: SURGERY: to be there at 6:00 am, supposed to go in about 7:30 am. Unknown how long or how extensive. Assume I will go to CCU after? Won't know until then the estimated time in-patient at Brigham. Brenda will up-date as before, and you know how thorough that was!! I'm kind of planning on 5-7 days in-patient, then staying a few days for the post-op visit before coming home.

Currently have reservations to return Mon, 10/2: depart Boston 5:00 pm, so lots of daytime for visit if release from hospital is Thurs or Friday. If, however, things go splendidly and I can come home earlier, we will change the return flight. So...warm, fuzzy, healing, positive, loving thoughts Thurs AM 7:30-10:30 or so.

Let's stick with the lilac/lavender theme: picture me wrapped in a blanket that color that is full of love from all of you. Hey, it seemed to work last time, so let's stick with a winner! Mom will be with me the whole time I am up there, my cousin-in-law Martha will be there Weds--Sun/Mon, and my cousin Fernando lives in Boston and will be around the whole time. I'm trying to give cousin Beth a break.   (Although she is standing by, bless her!)

I have been feeling really good the last few days, out and doing things. Stairs are getting easier and easier! Still get tired after several hours, but feel SO much better than last time. I think that I am definitely strong enough for this surgery. Will be using the "prepare for surgery" CD again, self-hypnosis and positive imagery with help of surgeon & anesthesia (program developed there). So, stay tuned, keep checking and keep those positive thoughts coming!

Thanks to all for your love and support, Laurie

Sunday, September 17, 2006

Sunday, late; Sept 17: brief

Hi all! Brian has to spend a little more time than anticipated getting the high-speed set up. Actually, it's the wireless that's the time issue. So right now I am sitting on the floor in the spare bedroom, leaning on my legs as I sit crosslegged in front of the computer--not my best position for updating! Will do schedule tomorrow. Laurie

Friday, September 15, 2006

Sept 15: Lots of general stuff

Hi again! Thanks to Deneen for the lengthly post! Yes, I did call Brian and he is coming over tomorrow to do the internet, clean up my computer and figure out my fax machine, which will make my bosses happy (need when on-call to get EKGs for ER patients).

Katie's grandmother was doing well last time she or I mentioned it, although certainly suffering from the effects of the concussion.

Two hernias are worse than one: more wire, more mesh, more surgical time. But since it was unexpected, it is better to know about it before the surgery than during, or even worse, after. Yes, the leaves will be nice, but not sure how much I will be able to see. I always have to dress warmly, because my mother runs very hot and always wants the air conditioner set very low. Fortunately, Cousin Beth loaned me a "prayer shawl" that someone at church had done for those who are sick, I will take that with me for the hotel. Brenda figured out a way to get one of my wedges into a suitcase, which will make the bed more comfortable in the hotel post-op.

Couldn't get to sleep until after 0300, time to use more drugs....  Got my hair done yesterday, so at least that will look good while I am unconscious and intubated! Will try to fit in getting the toenails done again: they are lavender/lilac from last round, but I think I want to go a little pinker, although one could argue not to fool with success. (It's the little things!)

  For those who were/are in EMS: check out the "random reality" website; it's hysterical! Maybe I'll do a P.A. version when I start working again, although we don't have as much regular drama as pre-hospital, just by the definition.

It's already 10:54 am, so have to get showered, etc. Going to surprise the gang at the office and drive down.

More later, Laurie

Wednesday, September 13, 2006

Sept 13: It's me, so it has to get worse

First Off: I DIDN'T KILL AN ANT!!! There wasn't an ant--I was taking literary license for effect!

OK, now that we have that settled.... So, I cancelled the appt with the thoracic surgeon here, because it wasn't fair to take up his time when I am already scheduled at Brigham. He called me today with the results of the CT, however. There isn't A hernia. No, it's me, so it's TWO hernias. Between 2nd-3rd ribs as well as the main one between the 3rd-4th ribs. Well, at least it's known before surgery, instead of during (which is typically when I've saved my abnormal physiology to be found!).

I'm really feeling pretty good. Still have sternal pain, and still get tired. Sleep cycle still off and a real pain. But I can do a couple easy errands and activities around the house and be up for about 6 hours before lying down. Still mostly driving locally, hurts with tight turns, so don't like parking garages.

Yesterday was a beautiful day, and I walked outside for 25 mins. The chest tube holes are finally closed, still a little tender. Arrangements are all made for next week, I'll put up the schedule in a few days. Big news: I just signed up for high speed internet! Anyone want to come over and figure out how to hook it up for me?! Only way to get it done fast was to do the self-install, and buy the stuff and modem. Should have ordered it last week, but I would like it in before I leave on Tuesday, so any help would be appreciated.

Thanks for checking in! Laurie

Sunday, September 10, 2006

Sept 10, Sunday: yup, more surgery

Hi all! Continuing to imrpove, holes continuing to close, feeling better on stairs. Chest still hurts, but I can do a little more. Driving somewhat painful, especially with turning, so restricting to just local driving for now. But, as those of you who have been reading regularly suspected, the hernia has to go. As I mentioned, it is ridiculously large and painful. I'm also afraid that one of these times when it comes out that the ribs or muscles will close around the lung, which, outside of the excrutiating pain, would also be bad for the lung. This can happen with regular abdominal hernias.

While having another surgery so soon after the heart will probably set me back in my recovery, it just can't wait. Also, it's better to get it taken care of now and only have to extend my return to work by a couple more weeks rather than doing it in six months or a year and taking off 4-6 weeks again. Besides, one of these years I would like to take a long vacation to someplace that does not involve my getting stuck with big needles and large tubes in strange places. The CT was interesting (and I didn't do anything embarassing!). With the bearing down manuver the hernia really showed up, to the point that the radiologist actually came out to talk to me and ask "Did they remove any of your ribs during your other surgery?" Now, outside of the fact that this indicates that he can't count :), it gives an indication of how much spread there is. I passed on the opportunity to say that I had given a rib back to Adam and explained the first surgery when they went between the 4th & 5th ribs and kept them spread for 10 hours, thus starting the problem. The sternotomy then cut a third side, so that's what made it worse. What it will take to repair is unknown, but the large and dense amount of scar tissue around my heart would indicate that there is just as much to cope with around the hernia.

I got the OR report last Monday (yes, my OR report!) and didn't know until then that the scar tissue had been so dense that they couldn't get into my left atrium to get to the mitral valve, and instead had to go through the right atrium and then cut open the septal wall to get to the left side. (No, nothing is ever easy with me!) And, since these lung hernias are so rare (Temple has only seen 4-5, and they do lung transplants), I would rather be at the hospital where they have a whole thoracic surgery department. Especially with as wonderful (relatively speaking) as my heart surgery experience was, my decision is to return to Brigham. I had already met with the Chief of that department, Dr. Bueno, so it wasn't a problem scheduling. Dr. Cohn wanted to wait six weeks, so on the six week anniversary, Sept 21, I will be in surgery up in Boston. There is a good chance of a thoracotomy, which is when they have to make a large incision between the lower ribs to get into an undamaged part, then go up the inside wall to free up the lung and "unstick" it from the chest wall, put in mesh and sew the ribs together with wire. Additionally they will probably go in another way to get to the outside of the rib cage for mesh there. While it doesn't involve my heart stopping again (unless there is a REAL problem!), it is still a pretty big surgery.

 I have spoken with my boss, Dr. Gladstone, and they remain incredibly supportive (although anxious for my return!) for another round. I had pointed out to him before that since I was never having children that these "leaves" could be considered kind of equal time wise!

While I am staying very positive about this, it is still nerve-racking.  I will have lost almost three years of my life by the time my recuperation is done, and I want to get on with living. So this way I can start 2007 with the idea of building my strength up as much as I can, and not having anything else hanging over me. More details later.

Again, thanks for the support and we will have a review of the happy healing thoughts on 9/21!

Laurie P.S. to Deneen: I didn't really kill an ant, it was just "dramatic license"!

Wednesday, September 06, 2006

Weds, Sept 6

Hi there! Just thought I'd update a little. Tomorrow is the four week mark! While there is still a lot of improvement to go, I keep reminding myself that it's not even a full month yet. Yesterday I walked for 16 mins at 1.5 mph. Washed my hair today and didn't have to lie down until after I was dressed and hair dried, which is a big improvement from my first post-hospital shower. Then I put a robe on while wet and had to recuperate in bed for 45 minutes.

Sleep cycle still off. Still pain. Still short of breath on stairs, tired with exertion. But I noticed at some point today that I was sitting on the sofa with my legs crossed "Indian style". Now, that may not seem like much to you, but I haven't been able to do that or cross my legs in TWO AND A HALF YEARS!!! Because it affects pre-load and pressures in the heart, making blood return more difficult, after a few minutes of my legs being crossed I would get dizzy and lightheaded. It's the little things, folks.

CT is tomorrow, where I get to do a Valsalva so they can get the scan of my chest with the hernia popped out. That means bearing down as on the toilet, which means I hope nothing comes out that would be embarassing! I've been practicing, however. And I get to drive myself--with the addition of a big, red heart pillow shoved between me and the steering wheel. Vvroom, vvroom!

Laurie

Friday, September 01, 2006

Friday, Sept 1

Yesterday was the three week anniversary of the surgery, and all things considered I'm feeling pretty good. A LOT better than previous surgery. Sleep cycle still off, tire easily, but no longer napping during day. Had some sternal pain after washing my hair this morning, but passed quickly. Holes in my abdomen from the chest tubes still pretty gross, but improving. Neck holes look great--almost can't tell anything was in there.

Yesterday I walked for 10 mins on the treadmill; the speed was only 1.3 mph, so pretty pathetic. There was an ant walking along side who was beating me speed-wise, so when I got off I stepped on him. :) Will try to increase speed to a whopping 1.5 mph today. Saw my cardiologist on Tuesday, then saw the thoracic surgeon on Weds. They were both pretty impressed with the size and horizontal spread of my hernia. CT scheduled for next Thursday, so I can drive myself! Appt with surgeon on Mon, 11th with decision if he thinks he can fix it. If not, I call the thoracic surgeon at Brigham who already saw me. The right chest hurts even at night with lying down. Getting about two cards a day, which I just love!

Thanks again for all the good wishes! Laurie