Sept 11: personal updates
Was not feeling well following the prior post. Exhausted constantly. This auto-immune thing is kicking my ass. Sjogren's sounds like just an inconvenience, but combined with my other stuff it's really life-affecting. I'm waking at least twice a night because my eyes and mouth are so dry between the Sjogren's and the air from the CPAP. Frustrating.
Started a new medication, very common for auto-immune disorders: methotrexate. It's a mild form of chemo. The rheumatologist did redeem herself and came up with this plan. Still on the prednisone, had to go back up to 20 then 15 mg, today trying 10. Tomorrow will be the third dose of the methotrexate, it's taken once weekly as with many chemo treatments. Takes a while to build up in the system. More on this later.
Right now I'm on Cape Cod, having just spent several days with Diane, a friend from UUMAC. Leaving as soon as I finish posting for New Hampshire to meet up with the cousins. Susan couldn't make it at the last minute, so it won't be as much fun, but still planning lots of quiet contemplative time, reading and writing. The new medicine makes me even more sensitive to the sun than usual (which is already pretty sensitive), so will have to stay inside from 10-3 or so but then hope to get in some decent kayak trips.
More details when I get back...... Now to do the yearly post.
Thanks for checking in, Laurie
Started a new medication, very common for auto-immune disorders: methotrexate. It's a mild form of chemo. The rheumatologist did redeem herself and came up with this plan. Still on the prednisone, had to go back up to 20 then 15 mg, today trying 10. Tomorrow will be the third dose of the methotrexate, it's taken once weekly as with many chemo treatments. Takes a while to build up in the system. More on this later.
Right now I'm on Cape Cod, having just spent several days with Diane, a friend from UUMAC. Leaving as soon as I finish posting for New Hampshire to meet up with the cousins. Susan couldn't make it at the last minute, so it won't be as much fun, but still planning lots of quiet contemplative time, reading and writing. The new medicine makes me even more sensitive to the sun than usual (which is already pretty sensitive), so will have to stay inside from 10-3 or so but then hope to get in some decent kayak trips.
More details when I get back...... Now to do the yearly post.
Thanks for checking in, Laurie
posted by Laurie @ 1:36 PM
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