Laurie's Heart Update

Thursday, August 15, 2013

Aug 15: quick update

Have second sleep study tonight.  Hoping that all that will be needed is just wearing oxygen at night.  Should get results next week, last time it was Tuesday.

The day after the last post I woke with not only the facial pain, but the feeling of a foreign body in my left eye, so had to increase the prednisone again.  Tapered down for today, only took 5 mg and so far OK today, but will take 10 mg tomorrow.  Being on the 5 mg doesn't affect my sleep.  I'm concerned it's taking so long to resolve the scleritis, and also how incredibly fatigued this exacerbation is making me--absolutely exhausted.

Today a drug rep came in who said she had called on me at my first PA job in Ridley Park, which I left when the company closed in 2000.  I didn't remember her at all.  She kept on saying 'You look so different than you did....'  I was so tired that my only comment was 'I've had some health issues over the years.'  Honestly, after I recovered from the surgeries I really haven't looked that different, but having an autoimmune disorder flare and having been on prednisone for over five weeks has left me with a puffy face and huge bags under my eyes, along with the lacrimal gland swelling around both eyes which is a sign of the Sjogren's.  But hey, thanks for reminding me. 

Stay tuned,  Laurie

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