Laurie's Heart Update

Sunday, August 22, 2010

August 22: BostonMed & Dr. Cohn

If you have nothing else to do with your time....

BostonMed is on ABC, a reality medical show that was filmed over a year ago and tells patient stories but mostly concentrates on the residents and interns at The Brigham, Mass Gen & Children's Hosp, which are all connected. Someone (Rose?) put in the comment section a few weeks ago that Dr. Lawrence Cohn was included. Just watched it and while I don't think he is highlighted enough (although I admit to being prejudiced!) it does give you a flavor for what he's like and how he is as a surgeon.

Google BostonMed, then go to Episode 6, put the cursor below the picture after it starts and go to just past the first notch on the timeline. Dr. Cohn's portion is fairly brief, first commenting on the chief resident and then coming into the surgery. A woman in her 30s needing aortic valve replacement and aneurysm repair.

You will see how incredibly blessed I was to have him for a surgeon and understand why I'm alive. He is probably one of the only surgeons in the world who could have saved me.

You will also have a better concept of why his warm and fuzzy treatment of me was such a stunning surprise to the staff!

Let me know what you think, Laurie

Monday, August 16, 2010

Aug 16: Vacation, The Climb & a Serenade

All ready seems somewhat distant.... But lots of pictures bring back memories--digital photography is awesome! As a point of reference, the camp is on the same lake that the movie "On Golden Pond" was filmed, which gives you an idea of the picturesque setting.

Got to NY Friday night, left for NH Saturday with some communication issues leaving me driving the five hours up by myself. Arrived in time to eat at camp and then jump in the lake, which makes me feel like it is actually a day of vacation instead of just driving.

Sunday: For years I've gone to Church Island for a few reasons. Firstly, it's a boat ride to a beautiful little island in the middle of the lake. Secondly, being in the middle of trees which are hundreds of years old, surrounded by water, often blue sky overhead and the mountains surrounding makes me feel like I'm in one of the most spiritual places on earth. This, to me, is much closer to the divine than being in a man-made structure. So, I'm willing to block out the parts of the service I disagree with (Episcopal, sometimes higher than others) for these two big pluses. But this time I felt like spending the time kayaking with the spirits would have been more beneficial. So, later that afternoon Emma and I went for the longest paddle I've been able to physically do in about ten years.

Monday: Kayaking, walking. John had said a couple months ago that he wanted to be there as I made my monumental (to me) achievement, the weather report decided that Tuesday morning was the best day. As the timeframe spread through the family, first one and then another decided that since we'd be going slowly they might as well come to. Then John didn't want to be the only able-bodied person, so more people started to get added. My problem was that at no time did anyone say that they wanted to be with me as a celebration. It wasn't at all about my struggle and accomplishments over the last six years, it was just we would be going the easy path and climbing slowly. After hours of debate with myself I decided that it was important enough to me to make a fuss, which I really don't like doing. We're a fairly typical New England family where a stiff upper lip rules, so this represented a major change in behavior. Breaking down and crying (which I didn't want to do) I made my case that this was very significant to me on many levels, that for the first time ever with the family I was making something be about just me. Happily, everyone agreed to honor my request.

Tuesday: The Climb. John and I set out immediately after breakfast. He had talked me into the less steep path, which was longer, afraid that I'd only be able to go a few feet at a time on the harder, although shorter, route. It was the right decision. I rested several times, but it was actually a lot easier than anticipated, maybe because I've been 'in training' for so many months. The longest rest was very near the top, because I wanted to be fresh for reaching the summit. As we hiked the last 50 yards the mountains came into view, then all of a sudden the ability to see part of the lake and the islands: I started crying. It was a wonderful experience: I was elated, felt a tremendous sense of accomplishment and pride. But rather disappointing was that the experience wasn't quite as special as climbing the Tor. The feeling was more "OK, checked that off the list" rather than a spiritual experience. Maybe I was expecting too much. Maybe the Tor, with its thousands of years of pilgrimage and religious worship, was even more a part of that first experience than I'd attributed.

The rest of the day I was somewhat tired. There were activities to go to, watching the kids do things. Wednesday and Thursday as well.

I did a couple more wonderful paddles--a kayak on a smooth lake is pretty easy. The weather fluctuated widely: we had a day well into the 90's, some rain, one night went down to 46 degrees. Thursday night was the camp talent show, and for the first time in years none of our family was participating. Everyone else went to watch, but I decided that the smooth lake was more appealing than watching the largely mediocre performances, even if interspersed with a couple really good ones.

As I pulled out of the bite and passed a rocky point, there was a man playing tunes on a hand organ (much better than an accordian), which determined which direction I headed. With the music following me for a while I headed for a very small island, mostly to have a destination. On a small cluster of rock nearby were several birds, and as I got closer two loons took off, flying low across the water. After circling the island and rocks I headed back, the sun had set but there was still a path of light coming across the water, the Rattlesnakes rose before me, with dozens of other mountains behind them and circling the lake, making me feel enfolded in an embrace. Music came wafting out to me again, the hand organist had been joined by a single violin, making an even richer sound. I rowed more slowly, wanting to extend the experience. A couple of other kayaks and a canoe were in the water before the point, also enjoying the impromptu concert. Suddenly a loon popped up, bobbing along, coming within a few yards of all the boats, seeming to enjoy the serenade along with the humans. The musicians eventually finished, I thanked them for sharing and began to paddle back into the inlet towards our cabin's dock. I was thinking that nothing could have made these couple hours any better when the haunting sounds of loon calls began, drifting across the water. These calls have always been thrilling to me; it was like a divine 'amen' to an incredible spiritual experience.

Friday morning I climbed Rattlesnake again, this time with Aunt Beth and Uncle George. They are both almost 80, so that gives you an idea of the lack of difficulty. That afternoon I'd wanted to have another paddle, but a small wind storm made the water very choppy. Evening was the square dance which the kids, now ranging in ages from 14 to 22, still participate in and enjoy.

Saturday mornings are spent packing and loading cars, the cabins are supposed to be vacated by 11 am. I decided to skip breakfast and instead went for an hour kayak on the calm water, the temperature cool but sweatshirt perfect. There were only a few other boats to be seen in the distance, I felt like the lake was mine alone. Three loons appeared about 100 yards away, an additional part of the experience. After packing and loading my car I was still able to have a final swim with my cousin Mark and his family, managing to change in the cabin before the cleaning crew arrived. It was a wonderful end to the week.

Both of my goals were accomplished: climbing the mountain again and having a spiritual experience. The surprise was that they happened at different times.

Thanks for checking in on my life, Laurie

Saturday, August 14, 2010

Aug 14: Observations about this blog

You're all waiting for the vacation report, I know. But a few other things first.

The last six and a half hours have been spent with the blog. It occurred to me today, not sure why, that if this site crashed a huge amount of the documentation of the last four years would be irrevocably lost. While I've made some entries in my laptop diary, the bulk of the detailing my life has been in this venue. So, despite the beautiful weather outside, I decided that everything needed to be downloaded or backed up or something-or-other RIGHT NOW.

There is a tab for actions that leads you to believe that you can send the information to your computer or a flash, but it lies. Checked on-line, a few other people had the same problem. Now I'm just panic-stricken. It doesn't matter that there haven't been any problems in the last 229 posts, if something happens in the next few minutes I will never, ever, forgive myself for not having taken care of this RIGHT NOW.

So, for hours now, I've been copying the majority of the posts (more need to be done) and pasting them into Microsoft Word. One by one. In my haste I didn't put in year groupings, so then lots of pasting to set up things differently. I'm sure there is a much easier and faster way to accomplish this with a lot less effort, but, again, I was compelled to do it RIGHT NOW.

If you didn't know before you certainly know now: I've got a little OCD issue. This shouldn't be a surprise. In my defense, it is the most common personality trait in emergency response personnel.

So, trumping vacation in my thought process are all the things that have cropped up while reviewing the last four years of posts. Here are a few:

1) THANK YOU for following my journey and nudging me when I wasn't writing regularly. That, more than anything else, has kept me at this. Being a terrible procrastinator I was sure that 'tomorrow' would be my next entry, but knowing that people were taking time out of their schedules to read this and it wasn't fair to go too long without saying something kept me much more disciplined than if I'd been doing everything privately.

2) There's a lot more stuff here than I realized, doing a book wouldn't be starting from scratch. Yes, yes, many of you have said that to me. But seeing the number of pages that resulted was pretty mind-boggling, although most of the time I also copied all the comments as well. But there's a lot of stuff here!

3) Serious editing needs to occur in most of the postings, including grammar and phrasing. I cringe when looking back on many of the entries, despite often spending more time correcting before posting than writing the post itself.

4) Wow, it's been quite a ride.

The material is more emotional since it was written at or close to the time of the events. That wouldn't be possible if I was looking back and recounting tales now. Being reminded of those raw emotions takes me back, but it's so much easier looking back instead of being there.

While I've been planning on a post specifically detailing my improvements let me just say now that it is so encouraging to see how far I've come.

Right now I desperately need to take a break, watch some TV with the fuzzy ones on or around me--they really like it when I'm on the couch. So, coming attractions:

-Vacation & activities
-The Climb
-Cardiology appt
-Excitement at SGM (w/o personal details, as part of our covenant)
-Next goal

More soon, Laurie

Monday, August 09, 2010

August 8: The outcome....

It's late on Sunday night, I should be in bed. Returned from NY this morning after sleeping there following the drive down from NH. Coping with laundry, needed to go grocery shopping as well as deal with the bills that seem to accumulate only slightly less quickly than the mounds of cat hair on the floor and rug. But I didn't want to be responsible for Barbara passing out!

On Tuesday morning, August 3, I attempted the climb of West Rattlesnake (elevation 1,243') using the Bridal Trail, which is longer at about 1.4 miles but less steep. And I did it! It wasn't as difficult as I'd been expecting, although several rests were needed. But my recovery was fairly fast, the entire climb was about an hour. Just short of the top I did stop for a longer rest, wanting to be as fresh as possible for the summit. And, predictably, when I started to crest at the top and saw the mountains come into view my tears started to flow. John was with me and was also crying. It was wonderful, fulfilling, spiritually uplifting and incredibly satisfying.

There was some family drama surrounding things, which will be explained later.

And because the climb was so wonderful, I repeated it again on Friday the 6th! That was done with the accompaniment of my 'Aunt' Beth and 'Uncle' George, both 79-80 years old, which tells you a little about the lack of difficulty. But my medical history is worse than both of them combined, so I'm not embarrassed!

Return to the normal work schedule, although thankfully starting late tomorrow. Right now I'm trying to make a CD of pictures for Mirko to take back with him to Italy, but being significantly hampered by the quickly dying optical drive that my cousin Mark tells me needs to be replaced. Trying to put so many pictures on was probably a mistake, but it seemed like it was working....

More later in the week. Thanks for checking again, Laurie

P.S. Barb, I'll bring pictures on Friday!