Dec 15: pre-Boston, reaction to someone's illness
Getting way backed-up with things to do. Tis the season, plus leaving for Boston on Wednesday. I had a rough week last week--just not enough down time and who knows what else. Felt worse and worse through the week and really had to shut down to recuperate by Friday and Saturday, which did not help the attempts to get a lot of things accomplished that really need to get done.
Tid-bits to ponder. A woman at my Fellowship announced this week (actually, her husband did the talking) that a lump had been found in her breast and looked very suspicious. She goes in for her biopsy on December 31 after meeting with the surgeon today, which should effectively put a real damper on the holiday season.
I don't care how much you tell yourself and everyone else that you aren't going to worry about it until you know more, you do worry. It may be beneath the surface of your conscious, you might manage to not think about it for great swathes of time during the day, but it's always there somewhere in your brain. You can't make the smallest plans without thinking about it. You can't think about birthdays and holidays that are coming up without thinking about it. You wonder if you are going to be getting treatment, and, if so, how you will feel, how sick you might look, what you will be able to do. You wonder how people will react to the news, how they will relate to you. You wonder if you will be alive. You tell yourself that you are over-reacting, that you shouldn't get ahead of yourself, to just calm down. You assure everyone else that you're handling it splendidly, staying positive. And, for the most part, you probably are. But it's amazing how just a few minutes of these thoughts can ruin your day. And that waiting for the news can really just be the worst, because then your brain just runs amuck with all the horrid possibilities.
This was my response to her group e-mail about the doctor's appointment and schedule:
The waiting is the worst, although a close second are all those helpful people who insist on telling you their "best" horror story about a biopsy or breast cancer. It's amazing the stupid things that come out of people's mouths sometimes.
So, do whatever you need to get yourself through this, because no matter how many other people may have had this, no one has your exact circumstances, history or emotions. People who have had the experience, however, do require fewer explanations regarding your feelings and reactions.
Give yourself permission to do what makes you feel better, whether that be keeping yourself busy or doing nothing. Personally, I tend to retreat into myself, which a lot of people have a hard time understanding. And be forgiving of yourself--you may not always be your usual even-tempered, nice personality. Sometimes what comes out of your mouth is not as well phrased as it might be under "normal" circumstances.
I'll send up warm thoughts and prayers to you and for you.
While I can't speak for everyone, I can vouch for many of us who have been diagnosed with something major and are struggling with the ramifications. A huge majority of people respond to your news with these words: "Oh, you're going to be fine! Everything's going to be OK!" And let me tell you: THOSE WORDS DO NOT HELP. They trivialize your feelings and the severity of the situation. They are said because people don't know what else to say, and so say what they think you want to hear. Or what they themselves want to believe. Please, I beg of you, avoid saying those trite, false phrases. Replace with "I'm sorry to hear that news. Please know I'll be thinking about you."
OK , way overdue to get to bed. Thanks for checking in again, Laurie
Tid-bits to ponder. A woman at my Fellowship announced this week (actually, her husband did the talking) that a lump had been found in her breast and looked very suspicious. She goes in for her biopsy on December 31 after meeting with the surgeon today, which should effectively put a real damper on the holiday season.
I don't care how much you tell yourself and everyone else that you aren't going to worry about it until you know more, you do worry. It may be beneath the surface of your conscious, you might manage to not think about it for great swathes of time during the day, but it's always there somewhere in your brain. You can't make the smallest plans without thinking about it. You can't think about birthdays and holidays that are coming up without thinking about it. You wonder if you are going to be getting treatment, and, if so, how you will feel, how sick you might look, what you will be able to do. You wonder how people will react to the news, how they will relate to you. You wonder if you will be alive. You tell yourself that you are over-reacting, that you shouldn't get ahead of yourself, to just calm down. You assure everyone else that you're handling it splendidly, staying positive. And, for the most part, you probably are. But it's amazing how just a few minutes of these thoughts can ruin your day. And that waiting for the news can really just be the worst, because then your brain just runs amuck with all the horrid possibilities.
This was my response to her group e-mail about the doctor's appointment and schedule:
The waiting is the worst, although a close second are all those helpful people who insist on telling you their "best" horror story about a biopsy or breast cancer. It's amazing the stupid things that come out of people's mouths sometimes.
So, do whatever you need to get yourself through this, because no matter how many other people may have had this, no one has your exact circumstances, history or emotions. People who have had the experience, however, do require fewer explanations regarding your feelings and reactions.
Give yourself permission to do what makes you feel better, whether that be keeping yourself busy or doing nothing. Personally, I tend to retreat into myself, which a lot of people have a hard time understanding. And be forgiving of yourself--you may not always be your usual even-tempered, nice personality. Sometimes what comes out of your mouth is not as well phrased as it might be under "normal" circumstances.
I'll send up warm thoughts and prayers to you and for you.
While I can't speak for everyone, I can vouch for many of us who have been diagnosed with something major and are struggling with the ramifications. A huge majority of people respond to your news with these words: "Oh, you're going to be fine! Everything's going to be OK!" And let me tell you: THOSE WORDS DO NOT HELP. They trivialize your feelings and the severity of the situation. They are said because people don't know what else to say, and so say what they think you want to hear. Or what they themselves want to believe. Please, I beg of you, avoid saying those trite, false phrases. Replace with "I'm sorry to hear that news. Please know I'll be thinking about you."
OK , way overdue to get to bed. Thanks for checking in again, Laurie
4 Comments:
At 11:37 AM,
Barbara Preuninger said…
I think you're right that many people say "you're going to be OK" because it's what THEY want to believe.
I immediately noticed that feeling in myself when the person you mentioned made that announcment. (Luckily, I did NOT tell her "you'll be OK", nor was I planning to do so.) But the truth is, I DO just want her to be OK. There's a degree of selfishness there, in the sense that I do not wish to confront her suffering.
I appreciate your insights, here, because I think I should work to overcome that tendency in myself. It does no good to anyone, and it's not the person I wish to be.
At 10:51 PM,
Anonymous said…
Actually, some people just cant find the "appropriate" words that others feel thats what should be said instead of their "you will be ok, etc." since when should people be crusified for trying to make others feel better, especially if they are truly saying those words and thats the best they can come up with. There is NOTHING wrong with someone conveying their feelings to you especially when they are truly meaning what the are saying. Just because they arent meeting your standards of "The right thing to say" OMG are you for real!! Focus on the positive, that someone gives a shit enough to say anything!!!!
At 6:34 PM,
Anonymous said…
Thanks for signing your name Anonymous.
At 6:44 PM,
Anonymous said…
Laurie,
Well,
First it amazes me that someone continues to attempt to censor YOUR conversation with US and do not truly have beliefs in what they say enough to SIGN their name.
2) To Anonymous:
Interesting view point from someone apparently scared and frustrated - not knowing what else to say in an uncomfortable situation to someone who is hurting...Does suck I agree.
Let me ask you - ARE YOU FOR REAL? You are contradicting, if you were TRULY trying to be caring and show concern 1. You would be interested if those words were causing more pain, [kinda like helping someone who's been in a fight – one would not be doing good if you repeatedly struck that person in a broken rib, saying but I mean to do well by you]. 2. If you truely cared you would be interested if you could understand from their shoes/view and do or say something meaningful to THEM and not just saying something [cause that makes YOU feel better]
*Let me ask you - Who’s crucifying who? I have re-read Laurie’s entry multiple times and all she is saying is hey if you are interested let me tell you something. When you say these words – this is how I felt.She clearly states
"While I can't speak for everyone" - thus she acknowledges not everyone will feel as she has, or as she has experienced in her work through pre-hospital, Dr. offices, and in-hospital feilds of service. She also has decades of having to tell people bad as well as good news and you begin to see the patterns in what helps and what changes body language. PLUS there is a lot of documented print stating - if you want to do the most good for someone learning of bad news often the best medicine is JUST LISTEN and let them know you CARE and are there for them.
Let me ask you --> Do you also feel that the people that yell and publicly embarrass others “not the same as them.” others that do not fit “their” view of how “the other” should be or look. - And hurt them public then say “I just love them and want them to change for “THEIR” own good, as your said --> “when they are truly meaning what the are saying”.
**** Really so you are saying it’s ok to be rude and hurt others if you know better or could LEARN better ways - because -- YOU feel like saying it so long as you can say you meant it in love and kindness to hell with if it hurts the person on the other end.
Again let me ask you ARE YOU FOR REAL? Hey if you don’t like the conversation feel free to get out of our blog! This is Laurie’s format to vent and talk to us freely WITHOUT censorship.
See ya BYE get out!
3) To everyone:
Hope everyone’s Christmas was GREAT and SAFE!
And
have a SPECTACULAR and SAFE New Year!!
4) Laurie
Hope your Boston trip was safe and you got back, also hope the trip itself went well!
Deneen
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